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The victims will most likely end up in nursing homes where they will receive treatment but this separates them from the family life.
The other factor is the cost that weighs down the concerned people in terms of medical bills. It is a disease that is expensive to manage since there are numerous scans that one must get and the cost of specialized care doesn't make it any better. The good news however is that there are several organizations that have volunteered to help the victims of this disease like Hunters Hope (2009) which was purposefully formed to cater for patients of the disease in terms of support and information among many other organizations.
Reference
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Krabbe Disease Genetic Components of the Disease Metabolic Components of the Disease Causes of the disease Symptoms of the disease Diagnosis of the disease Treatment of the disease Cord Blood Transfusion Treatment for Late on-set Form Gene Therapy Incidence and Longevity of the disease Socioeconomic Factors Krabbe disease, also referred as globoid cell leukodystrophy (GLD), causes a deficiency in galactocerebrosidase (GALC), the enzyme responsible for preventing a build-up of galactolipids in the brain. Without the regulation of galactolipids, the growth of the
Efforts to Achieve Healthy Aging Ping-Chung Leung Institute of Chinese Medicine, The Chinese University of Hong Kong, HKSAR. Abstract: Longevity is a blessing as long as good health is not lost. However, the tendency to have a decline on normal physiological activities is inevitable because of the natural processes of degeneration at all levels: molecular, cellular and organic. Hence, the elderly people frequently suffer from cardiovascular problems and skeletal deteriorations that gradually develop