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They should be informed in advance and as thoroughly as possible what the study would be about and how their participation would be used. That consent must be constant from the start to finish of the experiment, study or survey. These studies have their worth to society. They are intended to save lives and promote optimum health. There are risks taken in exchange for the ideal, but the involved parties should be fully aware of them and willing to take the said risks. At any stage of the experiment, the participants should be free to back out if they wanted.
Institutions and committees sponsoring or evaluating medical studies using live human subjects should clearly make a choice between the fundamental rights of these subjects to information and the future benefits to be derived by society from the researches. They should refrain from using live human subjects unless absolutely willing to take the risk. On the other hand, the management of sponsors to medical research should monitor the progress of the study....
It should make sure all the snags and issues arising from any stage are promptly and satisfactorily addressed. If in power, a responsible leader would take a representative sampling of all possible races. Every participant should be encouraged to express objections and views as the study progressed.
Moreover, an ethicist should be part of the project or consulted several times during the conduct of the study.
Bibliography
Christian Century. AIDS Crisis Among Blacks Tire to Mistrust of Doctors. 2 pages. Christian Century Foundation: Gale Group, 2000
Claudio, Luz. The Turkegee Legacy Project. 2 pages. Environmental Health Perspectives: National Institute of Environmental Health Services, March 2007
Hammer, Ben. Federal Government Awards $14 Million to Turkegee Bioethics Center. 2 pages. Black Issues on Higher Education: Cox, Matthews & Associates, November 20, 2003
Washington, Mary Dejevsky. Clinton Meets Tuskegee Victims. 2…
Bibliography
Christian Century. AIDS Crisis Among Blacks Tire to Mistrust of Doctors. 2 pages. Christian Century Foundation: Gale Group, 2000
Claudio, Luz. The Turkegee Legacy Project. 2 pages. Environmental Health Perspectives: National Institute of Environmental Health Services, March 2007
Hammer, Ben. Federal Government Awards $14 Million to Turkegee Bioethics Center. 2 pages. Black Issues on Higher Education: Cox, Matthews & Associates, November 20, 2003
Washington, Mary Dejevsky. Clinton Meets Tuskegee Victims. 2 pages. The (London) Independence: Newspaper Publishing PLC, May 17, 1997
WorldNow. Turkegee Syphilis Study. 3 web pages. Tuskegee University. Retrieved on December 16, 2007 at http://www.tuskegee.edu/global/story.asp?s=1207598
The Tuskegee Syphilis Study still remains as one of the most outrageous examples of disregard of basic ethical principles of conduct not to mention violation of standards for ethical research. The suspicion and fear produced by the Tuskegee Syphilis Study are still evident today. Community workers often report mistrust of public health institutions within the African-American community. Recently Alpha Thomas of the Dallas Urban League testified before the National Commission
Indeed, Hilts suggests that the conflict of interest between subject well-being and experimental results is often so significant that the system is threatening to escalate beyond the control of its administrators. The author notes that a conference on conflicts of interest in medical research has yielded evidence of questionable practices between the industry and researchers who test drugs or medical devices. It appears that money in medical research speaks as
For the many African-Americans who struggle with poverty, concerns about HIV and AIDS often fall to the bottom of their lists of concerns (Messina, 1994). When feeding their families, paying the rent or taking a sick child to the emergency room are everyday problems, concern about a disease that might be fatal in a decade is unlikely to be a priority. In African-American communities, childbearing is extremely important. Various researchers have
Administrative Evil Review of Unmasking Administrative Evil In Understanding Administrative Evil, authors Guy B. Adams and Danny L. Balfour explore the idea and evolution of the concept of evil. Adams and Balfour begin by defining historical evil as "knowingly and deliberately inflicting pain and suffering on other human being" (xix). However, in modern times, this idea has undergone a critical change. Historical evil has evolved into administrative evil, a form of evil