The Joint Commission's brochure on memory problems and dementia

National Patient Safety Goals -- the Joint Commission

National Patient Safety Goals

NR224 Fundamentals -- Skills

Dr. Ukot

The brochure from The Joint Commission entitled What You Should Know About Memory Problems and Dementia was published online on November 13, 2013. Eight professional associations collaborated with The Joint Commission to produce this brochure that is intended to be a reference for people who suspect that they may have a memory problem and are concerned that they may develop dementia. The target audience of the brochure is individuals who are experiencing symptoms of memory loss: this is apparent because the language used throughout the brochure text includes use of the pronouns "you" and "your."

Evaluation of Brochure

The brochure does an excellent job of presenting basic information about memory problems and dementia. In particular, the brochure explains in general terms how to distinguish between simple memory symptoms of aging, memory problems, and emerging dementia. The brochure is designed with an economy of text and sufficient white space to make it easy to read and appear uncluttered ("Speak Up -- Dementia," 2013). The expansive list of possible causes of memory problems seems like it could be a comfort to patients ("Speak Up -- Dementia," 2013). Another positive attribute of the brochure content is the list of possible activities and tasks when connecting with a doctor can contribute to more comfort moving forward, which means that a patient may see a doctor sooner than later ("Speak Up -- Dementia," 2013).

One topic that might strengthen the brochure is the inclusion of information about some of the current medications that possibly ameliorate the advance of symptoms. Discussion about the differences between early onset dementia and late onset dementia is also not included in the brochure. Considering these two topics, however, it is possible that they may add unnecessary complexity to the brochure, the consideration about obtaining a consultation with a physician, and contribute additional anxiety that could be avoided at such an early juncture in the patient's health care situation. The guide for physicians developed by the NIH Alzheimer's Disease Education and Referral Center is a good adjunct to the Speak Up brochure on memory loss and dementia, and it could be a useful resource for sophisticated family members as well ("NIH Physician's Quick Guide," 2015). The NIH physician's quick guide is easily accessed as a result of the inclusion of the link in the Speak Up brochure.

The topic is of interest to me as more people in my social sphere have received a diagnosis of cognitive deterioration or dementia. This is most likely a more common experience today since diagnostic capabilities have increased and because more people are living longer. Also, as the leading edge of the boomer generation ages -- and this is a large demographic group -- more of these otherwise able people have expectations that they will retain their mental capacities in the same way that they are able to strengthen their physical bodies through exercise and activity. The contrast between an active aging physical body and a deteriorating cognitive capacity is stark -- and must come as a surprise to patients and their families. Moreover, if a person has the expectation that they are going to age gracefully and continue to be independent, they may be more depressed and less willing to discuss their suspected decline with others. Western society does not offer much that is positive to older people, and pressed to continue working and otherwise competing against younger people, there are strong disincentives for investigating dementia. Certainly, robust stigmas are attached to dementia, a phenomenon which further discourages people from getting diagnoses and help early on.

Overall, the information in the brochure is presented clearly, in easy to understand language. Moreover, it is organized according to intuitive categories, which are defined by questions a patient or their family may have. The information could easily be incorporated into patient education, and could be aligned to an abridged patient information checklist for new patients, for instance.

It is safe to assume that nursing and healthcare research supports the information provided in the brochure. The links to the National Institute of Health (NIH) Alzheimer's Disease and Education Center is reassuring ("Speak Up -- Dementia," 2013). In addition, informational links are provided for a website that is an (http://eldercare.gov/Eldercare.NET / Public/Index.aspx) care locater, a memory screening resource, and 10 warning signs of Alzheimer's ("Speak Up -- Dementia," 2013).

It does seem that the brochure is primarily applies to people who are experiencing memory problems and are on the verge of conducting an investigation by connecting with medical professionals about the condition. The brochure also has applicability for family and friends who feel a need to broach the subject with a loved one or friend. Also, the brochure would also serve as a helpful resource to family members who are considering -- or must -- place a parent, sibling, or other relative in an assisted living care facility for people with memory loss or serious cognitive decline from Alzheimer's disease or a similar condition. The brochure shows strong promise for increasing patient safety as it provides critical information in a readily usable format that has wide applicability.

Conclusion?

The Speak Up brochure on memory loss and dementia is a good starting point for anyone who has concerns about cognitive decline. The primary benefits of the brochure are the encouragement of patients and family members to seek medical consultation in order to get answers to their questions, and the reassuring nature of the brochure content that lays out the possible other causes of memory loss and the typical activities and circumstances associated with the next steps in an investigation about memory problems or dementia.